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 Local Fibromyalgia sufferers seek support 

Local Fibromyalgia sufferers seek support

24 Jun, 2008 09:27 AM
Imagine suffering chronic pain and fatigue every day, with no visible signs, having people doubt the legitimacy of your condition and struggling with misdiagnosis.

Sufferers of Fibromyalgia deal with this every day, but want to give each other some kind of support while they suffer this condition.

A group of Inverell people who suffer from ‘Fibro’ meet once a month to talk, swap remedies and simply benefit from talking to someone who knows exactly what they are going through.

It is still not known what causes Fibromyalgia, with a number of theories but no one cause to be pinpointed by the medical profession.

Some of the possible causes of Fibromyalgia put forward by researchers include viral infection, immune or endocrine system dysfunction, autonomic nervous system dysfunction, substance P, physical injury or trauma an accumulation of phosphate due to enzyme deficiency or chronic sleep disorders.

This chronic condition affects two per cent of the population, and is characterised by widespread pain and fatigue usually accompanied by a variety of symptoms.

Few symptoms are outwardly visible, which has led to much confusion, labelling Fibromyalgia ‘the invisible disability’.

Common Fibromyalgia symptoms include fatigue, post exceptional malaise, muscle and joint aches, cognitive dysfunction, jaw pain, morning stiffness, chronic headaches, balance disturbance, mood and sleep disorders, abdominal pain, nausea, skin sensitivity and PMS type symptoms.

Fibromyalgia is more common in women, with many people affected unable to continue regular employment due to the severity of their symptoms.

A spokesperson for the group said it was refreshing to have other people to talk to about living with the condition.

“When you live with a condition like this it is great to have someone else to talk to who knows exactly what you are going through. This condition cannot be cured, so you need support from people to make life a bit easier.”

The next meeting of Inverell Fibromyalgia sufferers will be on June 20 where Bowen practitioner Chris Virgo will visit to give a demonstration on Bowen for Fibromyalgia sufferers.

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Date: Newest first | Oldest first
Having suffered for over ten yrs i am sick of people who say i understand unless you suffer with this no one can understand, I get fed up with my body as it fails me all the time, I have lost my life and FMS has taken it.
Posted by giggles2, 12/08/2008 2:18:06 PM
Is today a good day, yes it is. Even though I am off work sick today which is at least once a Month, my beautiful Mother after years and years of research has just today discovered that I have Fibromyalgia Syndrome. She was seeing a physcologist and was discussing how much it effects her life when I am sick all the time, she explained all the symtoms to the physcologist and in one second told my Mother it sounds like your Daughter has Fibromyalgia Syndrome, after dealing with all the symtoms for over 5 years and now at the age of 26 after seeing a number of Doctors, Specialists who have done every test there is, I finally have an answer and now I can actually work on making myself feel better. This has affected my ability to work, have fun and do all the things I want to do in life and now I feel that I can finally move forward and be more positive towards life. I feel for anyone out there that also suffers from this condition as it does take over your life but if there is help out there then it is a step in the right direction.
Posted by Sammy5782, 24/03/2009 5:25:50 PM

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